Resources
Fragile Kids Foundation acknowledges that the challenges caregivers of special needs children face are immense and unique. Many of our nonprofit partners and healthcare providers offer resources in a variety of areas to support families caring for medically fragile children.
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Referral Partners and General Support of Medically Fragile Children
Traumatic Brain & Spinal Injury Trust Foundation of Georgia
Phone: 888.233.5760
Travis Roy Foundation for Spinal Cord Injury Survivors & Research
Grant program offers assistance with home modification and equipment
Phone: 617.239.0556
Chapel Hill Training Outreach Program
Links to a respite locator service listed alphabetically by city for locations in Georgia.
http://chtop.org/Search-For-Respite.html
United Cerebral Palsy of Greater Atlanta
www.ucpga.org
Phone: 770. 676.2000
Champions for Children
Helps provide financial assistance for supportive services to help cover the cost of caring for their children at home
www.championsforchildrenga.org
Parent to Parent of Georgia
Statewide network of parents who’s children have disabilities or chronic illness
Phone: 800.229.2038
Brain Injury Association of Georgia
Provides community support programs assisting individuals and their families to have a better understanding of the effects of brain injury and to facilitate rehabilitation opportunities.
Phone: 800.444. 6443
Down Syndrome Association of Atlanta
DSAA enhances the lives of individuals with Down syndrome and their families through support, education, advocacy and awareness..
Phone: 404.320.323
Easter Seals of North Georgia
Provides services, education, outreach, and advocacy so that people living with disabilities can live, learn, work and play in our communities.
Pediatric therapy services in-home, at childcare centers or at Easter Seals locations
www.northgeorgia.easterseals.com
FOCUS (Families of Children Under Stress)
FOCUS provides emotional, informational, and physical support to parents of children with disabilities or with ongoing medical needs. FOCUS families deal with a variety of developmental delays, including rare syndromes, cerebral palsy, heart problems, immune deficiencies, and neurological involvement
Phone: 770.234.9111
Governor’s Council of Developmental Disabilities for Georgia
Phone: 404.894.5790
The Marcus Institute
Providing information, services and programs to children with autism and related disorders, their families and those who live and work with them
Phone: 404.727.9450
Spina Bifida Association of Georgia, Inc.
Promotes the achievement of full potential for persons born with spina bifida while emphasizing the prevention of this birth defect.
Phone: 770.939.1044
March of Dimes
Provides educational materials which promote the health of babies by preventing birth defects and infant mortality.
Phone: 404.350.9800
Brain Tumor Foundation for Children, Inc.
Provide financial assistance, social support, and information for families of children with brain and spinal cord tumors
Phone: 404.252.4107
Shepherd Center
Specializes in medical treatment, research and rehabilitation for people with spinal cord injuries, acquired brain injuries, multiple sclerosis, chronic pain and other neurological conditions.
Phone: 404.352.2020
CURE Childhood Cancer
CURE Childhood Cancer is focused on supporting childhood cancer experts, locally and nationally, who are working daily to discover the ultimate solution.
Phone: 770.986.0035
Georgia Organization of Parents of Blind Children (GOPBC)
A national membership organization of parents and friends of blind children reaching out to each other to give vital support, encouragement, and information.
Phone: 404.371.1000
Prevent Blindness Georgia
Volunteer health agency provides free vision screenings for pre-kindergarten classes
Phone 404.266.0071
National Kidney Foundation of Georgia
Provides dialysis clinical referral, vocational rehabilitation, financial assistance, summer camp etc.
Phone: 770.452.1539
Annandale Village
Provides residential services, day programming and skilled nursing care for adults with developmental delays
Phone: 770-945-8381
Muscular Dystrophy Association
Provides informational materials, networking/matching, referrals to local resources and summer camps
Phone: 770.973.3269
Myasthenia Gravis Foundation
Provides information, education and support
Phone: 770.973.3269 
Prader-Willi Syndrome Association of Georgia
Provides education and advocacy information on Prader-Willi Syndrome, respite, individual and family support
Phone: 770.886.2334
Specialty Resources for Children with Physical and Medical Challenges:
Lekotek of Georgia
Teaches new and creative ways to make play successful and interactive for children with special needs. Loans adapted and traditional toys for families to use at home and provides individualized support and resources to build on existing family strength
Phone: 404.633.3430
FODAC – (Friends of Disabled Adults & Children)
Provides assistance with donated and refurbished medical equipment and may assist towards funding to build a ramp for home accessibility
Phone: 770.491.9014 or 866.977.1204
Abilitations/Integrations
Catalogs, products, and information provide solutions for professionals and parents working with and raising children with special needs
Phone: 800.850.8602
Tech Able
Provides individuals with disabilities, their families and support professionals access to assistive technology devices through a lending library, demonstrations, training classes, information and referrals
Phone: 770.992.6768
Atlanta Alliance on Developmental Disabilities
Provides advocacy, collaborative recreation programs, referrals, transportation services, life skills training for students and more.
Phone: 404.88.9777
ATLANTA AREA SCHOOL FOR THE DEAF (AASD)
Phone: 404.926.7101
Georgia’s Unlock the Waiting List Campaign
Advocates working to eliminate waiting list for home and community based services for people with disabilities
Phone: 877.WAITLIST
Adaptive Learning Center
Maximizes the potential of young children with disabilities, and creates awareness and acceptance between people with and without disabilities.
www.adaptivelearningcenter.org
Phone: 770.509.3909
Elaine Clark Center for Exceptional Children
Accredited, non-profit early-intervention program dedicated to special needs children from 6 weeks to 12 years old
Phone; 770.458.3251
Frazer Center
Child development center and adult day services
Phone: 404.377.3836
Stepping Stones
Preschool program of the Atlanta Speech School for children ages 3 and 4 with speech and/or language difficulties
Phone: 404.233.5332
Atlanta Ronald McDonald Houses
Provides temporary housing and emotional support to families of critically ill and injured children who must travel to Atlanta area hospitals.
Phone: 404.847.0760
Hope House Children’s Respite Center
Provides onsite respite care for medically fragile children and in-home respite care for other special needs children
Phone: 770.634.4222
Metro Atlanta Respite & Developmental Services
Offers respite services as well as an early intervention program, inclusive childcare center an d therapy services.
Phone 404.691.5570
A Labor of Love
Offers consulting and assistance to parents of children with disabilities complete the Deeming Waiver forms and assit in organizing information to be sent.
Phone 678.313.1527
Special Olympics Georgia Family Action Network
Parent organization offers support and activities for families
Phone: 770.414.9390
ALTA Foundation Wheelchair Tennis
Offers free instructional clinics in spring and fall
Phone: 770.339.5788
BlazeSports
Sports summer camps for youth ages 10-18 with physical disabilities
Phone: 770.850.8199
American Association of Adapted SPORTS Programs
Interscholastic sports for kids with physical disabilities – elementary through high school.
Phone: 404.294.0070
Marcus Jewish Community Center of Atlanta
Offers special needs programs
Summer Camps
Camp Hargrove
Summer camp offers arts, crafts, swimming, and day trip for children with brain injuries
Phone: 678-937-1555
Hope in the Meadows
Offers a full inclusion day camp for campers with developmental disabilities ages 6-18
Phone 404.816.3867
Lekotek Summer Computer Camp
Campers with physical, cognitive and/or sensory disabilities learn with siblings and peers to play using adaptive technology
Phone 404.633.3430
Spina Bifida Summer Program
Focuses on independent living, mobility, social and cognitive skills
Phone: 404.785.2244
Camp Wannaklot - Hemophilia of Georgia
Summer camp for children with bleeding disorders
Phone: 770.518.8272
Camp Hawkins
Residential summer camp for children 8-21 with developmental disabilities. Sponsored by Georgia Baptist Children’s Homes and Family Ministries
Phone: 770.463.8645
Camp Kudzu
Provides education, recreation and peer-networking programs for children living with juvenile diabetes.
Phone: 770.947.3103
Camp Rainbow
Residential summer camp for children ages 4-16 with cancer and blood disorders who are patients at thae MCG Children’s Medical Center
Phone: 404.325.7979
Camp TBI (To Be Independent)
Sponsored by Walton Foundation for Independence, this camp is designed for children 8 – 18 (or up to 21 if still in school) with acquired brain injuries.
Phone: 706.533.8076
Evaluation & Medical Services
Child Neurology Associates, PC
Child Neurology Associates, P.C.
Telephone: 404.256.3535
Fax: 404.847.9596
Children’s Medical Services (CMS)
Statewide program with medical and financial eligibility that provides or arraganges speciality services for children birth to 21 with chronic medical conditions.
http://www.health.state.ga.us/programs/cms/
Phone: 800.229.2038 or 770.451.5484
The Marcus Institute
Services include evaluations, pediatric feeding disorder program, speech language pathology and a mental health psychotherapy clinic for children ages birth 0 22 with developmental or learning disability.
Phone 404.419.4000
Hippotherapy & Therapeutic Riding
Chastain Horse Park Therapeutic Program
NARHA Premier Accredited Center. Offers year-round equestrian assisted activities and therapies for children with physical, cognitive or emotional challenges.
Phone 404.252.4244
Specialty Programs for Children in Crisis
Angel Flight of Georgia
Provides free air transport to people who need to travel for specified medical treatment, therapy, or cancer treatment tha is potentially life saving and not available in their local area.
Phone 770.457.7958
Childkind
A foster and foster to adopt agency for medically fragile children
Phone; 404.248.1980
Best Buddies
Pairs teens (or adults) with a Buddy their age who has an intellectual disability to hang out with and get to know.
For more information go to http://bestbuddies.org/best-buddies
Educational programs and services provides by IDEA (Individual with Disabilities Act)
Georgia Programs:
Babies Can’t Wait of Georgia Early Intervention
http://health.state.ga.us/programs/bcw/
Special Needs Preschool
http://health.state.ga.us/programs/bcw/
FEDERAL PROGRAMS
Social Security Income
Phone: 800.772.1213
Deeming Waiver (Formerly known as the Katie Beckett Waiver)
Contact: Georgia Medical Care Foundation
Phone: 800.982.0411
Services for Sensory Impaired Chldren (Vision & Hearing)
BEGIN (Babies Early Growth Intervention NEtwork)
Phone: 404.875.9011
Georgia PINES (Georgia Parent Infant Network for Educational Services)
Phone: 404.296.7101